| My name is Pedro Vinicius, I was born on 06/24/2003 in Rio De Janeiro, Brazil. I was fine up to 2 months of age. After 1 month in the hospital, I stayed in the intensive theraphy unity (here UTI). I had generalized edema (my parents looked for doctors). Beyond the edema, I also suffered from vomiting, and had diarrhea often (with such a bad smell). The doctor's thought I had a milk allergy, so I began to take neocate for two months (I got worse than I was before). I was then subjected to endoscopy and many other exams. The biopsy confirmed IL. My doc changed my diet, using MCT, alfaré and limited I was limited to 11g of fat. I stayed well up to 2-3 years of age. My parents took me to Sao Paulo, where I continue my treatment, with a hiperproteic diet, MCT, caseical and no fat. Now when I swell because of albumin loss, I get admitted and receive albumin. Now the exams are essentials to the research, my immunity is low, but I don´t take IVIG yet. The doctors are still studying this possibility, inspite of not getting infections that often. I live as normal a life as possible of course and my mom did and does everything to help me. I have two brothers, Rafael is 17 and Bruno who is 10 years old. You can visit my page, It will be a pleasure for me. And comments too. http://pedrovinicius.zip.net If you want to send me email: gabriellabarreto@gmail.com Good bless you all Gabriella , Marcelo and Pedro |
Little Leakers
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Meet Pedro
